One of Australia’s largest IVF providers has sought to suppress how sensitive medical and personal information for potentially thousands of its patients was published to the dark web by cybercriminals, as victims seek to launch a class action.
Genea, the country’s third-biggest fertility clinic operator, informed an undisclosed number of patients that their private information had been published on the dark web in February after its internal systems were breached.
Stolen data included patients’ full names, dates of birth, addresses, mobile numbers, treating doctors, medical diagnoses, Medicare numbers and private health fund details, Genea revealed to patients in emails.
Australian Federal Police are conducting a criminal investigation into the breach.
Genea has sought suppression orders in the Federal Court to prevent disclosure of details regarding its containment and remediation measures and its negotiation strategy, and the identities of its cybersecurity experts.
Class action law firm Phi Finney McDonald is investigating the circumstances of the data breach after being contacted by several distressed current and former patients.
Principal lawyer Tania Noonan said: “Patients at Genea are entitled to the highest levels of privacy and safety to ensure their personal details and medical histories remain secure.”
One Genea patient, Dean*, described the breach as “emotionally devastating”. He wishes to join a potential class action and wants punitive action taken against Genea.
“If I could think about any part of my life that I would not want to be available to download on the dark web, it would be my medical information and more poignantly, my fertility information.”
“It’s made me feel really icky to know that … our entire medical and fertility history is available to purchase by anyone who wants it,” he said.
In a statement, Genea said it sincerely apologised and deeply regretted that personal information was accessed and published.
“We are committed to learning from this incident, and we have taken steps to further strengthen our networks to ensure that we can continue to provide the very best care to our patients,” it read.
Genea obtained an injunction to prevent any access, use, dissemination or publication of the affected data, to protect the information of its patients, their partners, and staff.
In a hearing last month, Genea’s counsel argued that if the company’s containment and remediation measures were made public, it would invite hackers to exploit its systems further.
NSW Supreme Court Justice Michael Slattery agreed that it was important to suppress personal and medical information of affected patients.
But, Slattery said: “There is a public interest in knowing about this kind of problem and … how it is dealt with.
”I’m not convinced that information [about] your clients, employees or your client’s internal operations should be suppressed,” the judge said. “I’m not convinced that the identity of the cybersecurity experts you have retained … [and] that your containment or remediation measures should be suppressed.”