Interest in Genea data breach class action growing
September 22, 2025
The SBS has published a very interesting piece on the Gena data breach and medical privacy in general with ‘Really angry’: Isabel is one of hundreds considering class action against this IVF provider. The Story reports that Phi Finney McDonald are investigating whether to undertake a class action.
The story highlights the chronic problem of organisations holding personal information much longer than is reasonable. The health sector is particularly prone to this data hoarding. There have been cases where the medical practices of patients who have died. The deceased have no privacy protections but there is no basis for holding onto such records. It is a systemic problem. Because the cost of storing digitised personal records is inexpensive and becoming less and less expensive there is little urgency or financial need to purge data bases. The Genea and Optus data breach reveal that such poor data handling results in personal information being taken which should not have been in the possession of the organisations to start with.
The Genea data breach also highlights how a poor data breach response plan can aggravate a damaging situation. Genea initially treated its patients and ex patients poorly, has been very closed mouthed about the data breach generally and took an inordinate amount of time to properly notify those patients affected.
The article provides:
Hundreds of Australians have shown interest in a class action lawsuit, which could be the first test of new reforms to Australia’s Privacy Act.
Isabel Lewis wanted to have children so badly that her friends nicknamed her “clucky”.
She would write letters to the child she dreamed of having, but there was a stumbling block for Lewis.
“I was 38 and single,” she tells SBS News.
“It was hard to date when you are single, but you are desperate to have children.”
It was then that Lewis made a big life decision: to pursue motherhood without a partner.
“In that process, I was like, ‘Well, clearly then I’ll be single forever. No-one will ever want to date somebody with children,'” she says.
“But then I met Chris.”
The pair clicked, and for her next cycle, Lewis put her initial donor on hold and used her new partner Chris Lewis’s sperm instead.
A few cycles later, they were trying for a fifth time, a cost that put the pair into debt.
Lewis says this was going to be their last try, but to her amazement, not one but two of her embryos were successful.
“We had twins, baby boys, and they’re Chris’s biological children,” she says. They’re the jackpot babies.
Eight years on, her boys are happy and healthy, and she and Chris are married.
The now 46-year-old holds her journey to motherhood close to her chest, but since a data breach targeted the fertility clinic she used, she’s become concerned it could be exploited for malicious purposes.
In February, Genea Fertility informed clients, including Lewis, via email that personal data had been breached by cybercriminals and posted to the dark web.